Coding Mental

Last weekend I traveled to the lovely city of New Haven for a mental health hackathon hosted by Hack Mental Health Care. I was very pleasantly surprised by the experience, which proved interesting, fun and invigorating (with a few healthy dashes of disappointment and horror).

I was mostly expecting undergraduate participants with ideas for mood tracking apps, but the event drew over 200 people, and was quite diverse.  In addition to programmers, designers, product folks and business people showed up. Genders were closely balanced and minorities were represented. Crucially, over 30% of the participants had clinical or lived experience. The event also featured a therapy dog, yoga sessions and a guided mediation. Peer voices and ethics were featured in some of the talks, although due to time constraints, project design was complete and implementation was already underway. And, kudos on the Code of Conduct… next year I would also love to see consent-based photography and sponsored childcare.

The organizers worked hard to prompt the participants in advance with these challenges:

  • Challenge 1: How can we help to reduce the rates of suicide?
  • Challenge 2: How might technology increase access or improve treatment for people with substance use disorders?
  • Challenge 3: How might we use data to drive meaningful insights for patients and clinicians that improve mental health?

The challenges were a bit solutionist in their framing for my taste, but were generally crisply formulated and well researched.

A recap of the event is posted on medium: HackMentalHealth Yale’s Collegiate Mental Health Hackathon Recap, along with links to the winning projects.

I floated across a few teams including with a group who had the insight that a person’s musical listening preferences might reveal something important about their mood – Team Moodify was born. The theme of risk assessment prevailed across many of the projects I encountered. To speculate, risk assessment probably feels like a more tractable problem than crafting an intervention, and one that is amenable to statistical analysis.

Our team had a great conversation about what the team might do with a risk assessment assuming it could be computed – should Spotify summon law enforcement if it detects you are at risk? Should they contact your friends? Alert you to your own mood? Would a user be aware of this monitoring, and could they configure it according to their own preferences?

Team Moodify valiantly worked all weekend and came up with a prototype that allows users to log in to their Spotify account, and create a mood boosting playlist based on their own listening history (Spotify itself has a notion of valence and energy for a song that was used to find similar songs).

We didn’t have time for it over the weekend, but someday I would love to add a social component and create a mechanism to solicit a mood boosting mix tape from your friends 😉

For more about Moodify, see https://devpost.com/software/spotify-mood-detector-nqcdlj/ and https://github.com/jacsonding/Team_Banana)

Across projects, common themes emerged. Teams identified the need for better directory and referral services (an area where OpenReferral could really help), and gravitated towards monitoring and risk assessment. The studio-style format allowed for wide variation in these designs based on small differences in inflection. So, for example, Flip, a winning project about a Chrome extension designed to flag upsetting content, could benefit greatly by putting more agency back into the user’s control – allowing the user to configure and customize settings and thresholds, as well as actions to take when upsetting content is identified.

At the next Hack Mental Health session I would love to see the community continue to grow. I think the projects would benefit from a more structured design phase – intentional, community driven, persona driven, etc (BigApps does a great job with this now).   I would also love for more open source and open standards to be represented and used – new coders could join an existing community and contribute towards a longer term goal. I would also enjoy more unconference style collaborations – more ice-breaking and exchange during team formation, lightning talks given by participants, self-organized birds of a feather conversations.  Finally, all the teams should have a chance to present their work to each other – I fear many participants left the hackathon without appreciating much of the worth done by other teams.

Thanks to all the organizers and sponsors for pulling this together. Next year in New York City?

peddling platforms

7175132773_dc83a2d1f2_bNew York City’s bike share program is flourishing, and I recently signed up for a membership even though I live outside the range of any Citibike stations. I find it convenient and fun to use the bikes to cross town, as well as zip from place to place when I am downtown. Since my first ride on the Parisian Vélib’, I’ve become a huge fan of bike shares, and have enjoyed rides in Paris, DC, Denver, Miami, and Toronto.

The other month I had a great conversation with a local bike shop owner about the new program, and he conveyed the anxiety that many bike shops are feeling around Citibike. Understandably, many are concerned that the bike share will cut into their rental and retail sales, although I think it is likely that an increase in  biking will generate more interest and awareness, and generally increase the demand for bikes and bike services.

Our discussion helped me recognize was how the city bike shares can be viewed as a platform for innovation, in the same sense that the iPod/iPhone is platform. And, just as the iphone-as-platform enabled a large ecology third-party  hardware and software businesses, bike shares present an analogous opportunity to creative entrepreneurs. Platforms can support entire ecosystem, and city bike shares provide an opportunity to build a new ecosystem around them.

Cases and Chargers

Let’s start with the hardware. I don’t need an MBA to understand that the real money in retail is made by selling accessories. For the iPhone this includes cases, cables, and a range of other devices, but retailers like Amazon and Best Buy have invested in incredibly complex systems to track the relations between products and their compatible accessories.

Consider this. What New Yorker wants to be mistaken for a tourist while riding their Citibike? What they need is a way to (fashionably) express themselves, and make the generic bike their own. Starting with an appropriate pannier bag, Citibikers need an easy way to transport their helmet, gloves, music, and personal belongings. Bike shops currently have entire walls devoted to these kinds of accessories. With some focused curation bike shops can begin assembling “MyCitiBike” kits that are segmented and suitable for the demographics of their customers, no custom manufacturing required.

Bags and accessories are just the start. Helmets should be as ubiquitous as umbrellas—inexpensive ones sold by street vendors, and maybe more durable ones available in vending machines, for a refundable deposit. You would just need to bring your own liner, which you could conveniently stash in your pannier bag.

Turn on the lights

Consider the explosive proliferation of bike lights that are poised to transform New York City into Black Rock City. Bike lights are being sold in  increasingly dizzying arrays of frequencies and patterns, but the arms race for visibility and attention may soon devolve into visual noise and distraction as the density of bikers grows. Imagine you are a biker who wants to communicate your intentions to a motor vehicle. During the day, there is a system of hand signals for signaling your intent. But currently are are’t any well established  standards for bike lights, other than white in the front and red in the back. Some of the standards that could help are obvious—more red when I’m braking, and left and right blinkers when I’m turning.  Others, like wireless control of helmet mounted lights, still need to be worked out.

Some European bike manufacturers have begun introducing signaling innovations, but without standards these efforts will likely stall. Standards can emerge from the top-down, by mandate or regulation, or the bottom-up, by convention and adoption. I believe that bike share fleets present a powerful opportunity to innovate on bike safety and standards in a way that could lead the rest of the market.  Admittedly, it would be difficult to convince municipalities to devote the resources to underwrite these features. However, I dream of a day when stakeholders such as Transportation Alternatives and Critical Mass work with the Mayor’s office to hold Citibank’s feet to the fire. Instead of just a marketing campaign designed to whitewash their reputation, the Citibike program could be used to spearhead safety initiatives, such as lighting standards and open APIs, that could eventually make their way across the rest of the biking industry.

Computational Cycles

The iPhone has the app store, and bikeshare apps could be just as expansive. From quantifying yourself for fitness and health, to turning the city into one big arcade game, the possibilities are really wide open. It’s easy to imagine apps which bring traditional “pedal-for-charity” campaigns into 21st century, as well as casual team games like capture the flag or even frogger.  Some of these games could be powered by apps that run on smartphones, or fitness trackers (e.g. fitbit),  but once again, the bike-share platform offers an opportunity to standardize data formats and open apis for ride tracking. RiderState is an early example of a competitive social game for bikers, but more will surely follow.

?

It’s an exciting time for cyclers. US cities are finally embracing bike lanes and bike shares are spreading across the country. Bike safety continues to be a pressing issue, as projects like crashmapper vividly demonstrate. Creativity is spinning around gorgeous projects like Monkey Electric, and revolights brings brakelights to your wheels. There is a huge opportunity to coordinate some of this activity around platforms like the Bixi bike, and build a thriving ecosystem around bike shares.

 

Hippocratic hypocrisy

caduceus-eyeWhen I graduated from Teachers College in ’07, I donned the goofy ceremonial robes and walked with my classmates at the university-wide commencement.  I distinctly remember my astonishment when I heard the medical graduates recite the Hippocratic oath, right there, for all of us to witness. I remember thinking to myself that other professionals should be required to recite oaths too, as lawyers, teachers, journalists, and others all have the power to do great harm, but I suppose that medicine still occupies a unique place, as the power to heal is synonymous with the power to kill.

I have arrived at a point in my dissertation research where I am now convinced that the psychiatric-pharmaceutical complex is in violation of the Hippocratic oath. I realize that this is a heavy accusation to make, but I now believe that the field has gone beyond simple, or even gross negligence, and has crossed the line into willful harm.

Apollo Physician and Asclepius and Hygieia and Panacea and all the gods and goddesses, making them my witnesses, that I will fulfill according to my ability and judgment this oath and this covenant:

I will neither give a deadly drug to anybody if asked for it, nor will I make a suggestion to this effect… In purity and holiness I will guard my life and my art.

I make this claim based on a range of evidence – scientific, journalistic, anecdotal, end experiential.  Some of this evidence can be found in earlier posts on this blog, as well as in coverage in places like The Icarus Project, Madness Radio, and Mad in America.  But this post is less about demonstrating that the oath has been violated and trying to imagine a proportional karmic response.

For starters, consider that pharmaceutical companies don’t even take the Hippocratic oath – their charters don’t contain anything like Google’s “Don’t be evil“, and their employees aren’t required to take the Hippocratic oath upon hire. Their sole responsibility is to maximize shareholder value (and increasingly, that includes breaking the law as the calculated cost of running a profitable business). I’m under no delusion that adopting language like this would instantly reverse decades of malfeasance, but it might help generate a few more Edward Snowdens in the pharmaceutical industry.

It’s fascinating to me that we continue to invoke the Greeks with this oath. Now that it’s been violated, it is our duty to wake Zeus and Apollo and help them raise Olympus. I’m afraid that Jehovah, especially since Jesus, simply doesn’t have the wrath to deal with the crimes that psych-pharma is perpetrating.

For years I thought that a divine lightening bolt would strike psych-pharma over the harmful and abusive use of the toxic atypical anti-psychotics (Zyprexa, Seroquel, Risperdal, Abilify, Clozaril, Geodon, etc).  These drugs cause massive obesity, metabolic disorders, and diabetes(!), and are being prescribed liberally to kids, seniors, veterans, and prisoners. Despite billions of dollars in fines for over-marketing these drugs (last month Johnson and Johnson was fined $2.2 Billion for Risperdal, but they assured stockholders this fine would not have an adverse affect on their finances). I am learning how difficult it is to rally voices to defend the defenseless, and lately I have been rethinking approaches for slowing down psych-pharma’s relentless expansion.

As the anniversary of the tragic Newtown killings approaches we need to reiterate the call to redirect the journalistic inquiry following tragedies like these. Unfortunately, mass killings in the US continue at a horrific frequency, and the prevailing journalistic narratives have revolved around gun control and mental illness. The question that needs to be asked following these tragedies is – What psych drug was the perpetrator coming on (or off of) before the attack?

In 2004, the FDA issued a blanket Black Box warning on all antidepressants (updated in ’07) about the increased risk of suicidal thinking and behavior that antidepressants have been found to cause in some cases. The documentary film Prescription Suicide presents a gripping profile this disturbing trend . And, antidepressants may actually cause an increase in violence and aggression, which can be directed inward or outwards, leading to suicidal as well as homicidal thoughts/behavior. While the FDA’s 2007 black box warning only mentions the risk of suicide, the chorus of incidents connecting antidepressants with homicidal thoughts and actions continues to grow, and the FDA is tracking and documenting the violent side effects of psychiatric drugs. While the percentage of patients exhibiting these extreme side effects is low (< ~3%), these drugs are prescribed in such large numbers that even such small percentages add up to significant consequences.

The stories about mass killings in the in the mainstream media have revolved around gun control and mental illness, but crucially, they are missing an essential interstitial step – while the perpetrators may have been going through an emotional crisis, is the psychiatric intervention worse than the original condition? This account won’t explain (away) all of the gun violence in America, but it is only a matter of time before a national tragedy is linked to a popular, brand-name antidepressant.

What’s going to happen when this story finally breaks? Will patients rush to their physicians, demanding to switch to a competing brand (even though the side-effect profiles are quite similar across brands)? What will happen to the stock price of the pharma company whose unlucky number just came up? In the ensuing litigation, will documents emerge demonstrating that pharma has been aware for years of the violent, homicidal side-effects of their products?

There are scandals brewing in Big Pharma that will dwarf the scandals in Big Tobacco.

ZEUS_LIGHTINGIN

Dear Frank,

I remember the first time we met. It was my third and final interview for my current job at CCNMTL back in Spring ’04. I was initially anxious, but you immediately made be feel welcome and comfortable. [Over the years I came to appreciate your gift for authentically connecting with just about anyone, often within 30 seconds of meeting them. You dispatched with superficial niceties and blazed trails directly to people’s souls. You bridged intellect and emotion, without a hint of pomp or circumstance, projecting sensitivity and respect to everyone you encountered. Age, class, race, gender – not so much that these dimensions were irrelevant, but you always managed to connect with the individual. You actually listened. And learned.] During that interview I remember walking into your office, encircled floor to ceiling with books. You asked me about my undergraduate senior thesis, a topic I hadn’t revisited in almost a decade, and then proceeded to pull Julian Jaynes off the shelf. You showed me your photo with Allen Ginsberg, and then asked me if I recognized the person in another grainy b/w photo. When I correctly identified Wittgenstein I was pretty confident I had landed the job. But, more importantly, I had found a new mentor.

We didn’t interact very often my first summer at CCNMTL. I worked in Butler library, under Maurice’s supervision, and you were keeping summer hours, at your office in Lewisohn. When Fall rolled around I was eager to enroll in classes, and begin my graduate journeys, but I was nervous about signing up for a course with my boss. You never made me feel like a subordinate, but I was scarred from my relationship with management at previous jobs, and wasn’t sure what it would be like for us to enter into a student-teacher relationship. I hadn’t quite figured out that that was the only kind of relationship that you knew how to cultivate, although our roles were constantly revolving and inverting, as you shared your wisdom, and facilitated growth in every exchange. You brought out the best in everyone around you, rarely content to talk about people or events – always rushing or passing your way into the realm of the Forms. As I reflected when Robbie retired, I chose to enroll in your legendary Readings seminar after one of your students (I think it was Joost van Dreunen) made the case that your syllabus was your text on social/cultural/critical/communications/media theory.

That year was invigorating. I remember rediscovering the joys of school, as I learned to reclaim spaces of intellectual exploration and play, and translate them into action. On the surface, our seminars resembled office meetings, but the luxury of non-directed (not to be confused with non-purposeful) conversation, which was a privilege I needed to readjust to.

Together we figured out ways to weave together disparate threads of my life – work, hobbies, play, passions – somehow, I learned to integrate these (often inconsistent) vectors into a unified construct. A self, I suppose. But, it was my self, not one you imposed on me. It never felt like you pushed your agendas or ideologies on me – rather, you always wanted to help me discover what I really want to think about and work on. And I know that I’m not the only one that believes this – this was your way.

I often wish you had written more, although your autobiographical text is a multi-volume, multi-dimentional, multimedia masterpiece. Sometimes I wonder how seriously you took Socrates’ critique of writing, along with his commitment to be a midwife for ideas. Did you lose count of the number of dissertations you helped deliver?

One under-studied paper that you published, “Who controls the canon? A classicist in conversation with cultural conservatives,” (Moretti (1993), Teachers College Record, 95, pp. 113-126) captures many of the paradoxes you embodied and worked through. A radical classicist, a skeptical optimist, a scientific artist, a philosophical craftsman, an institutional revolutionary. Somehow, you integrated these roles with a career trajectory that not even the most advanced detectors in the Large Hadron Collider could trace. I watched you start countless conversations with a Greek or Latin etymology, charming the academics, administrators, and funders alike in a display of the continuing power of the Western cannon. You constantly reminded us of the classical education that many of our favorite thinkers received, and insisted we read them against that backdrop. But, more importantly, a reminder of how radical these thinkers all were in their own time, and how likely they themselves would be protesting the ossification of the cannon, if they were around today. These lessons will live on through one of the last projects you initiated, Decolonizing the Cannon, which a number of us are committed to follow through with. After 25+ years of reading Homer every fall, it will take us a lifetime to reconstruct the lesson plans you left behind.

In the 9 years that I’ve known you we’ve been to hell and back. We’ve studied together, traveled together, worked together, gotten sick and healed together, but all the while kept our senses of humor. I’ve read many beautiful eulogies about you, but in this letter I want to emphasize your enduring sense of humor. You were a funny man. LMAO funny. Slapstick funny. Dada surrealist funny. Hashish funny. Plenty of the humor was dark, and perhaps, as your student Ruthie suggested to me recently, your humor helped shield you from the brutal injustices that you perceived and experienced all around us. But you were also sometimes a klutz, in an absentminded-professor sense, and a disorganized mess. A creative mess, but a mess. But, I have to say, that even when you were operating on scripted autopilot, you were way better than most people at their best. There wasn’t much you enjoyed more than being called out for your lapses in attention, and my glimpses of your inner monologue were often hysterical. I think that your analysis of power led you to conclude the the world was simply absurd. We all witnessed you acting on this with gravitas and determination, but in the minutia of our micro-interactions, there was always a wide smile and a belly laugh. I don’t think any of us will ever forget the sound of your laugh. (Or, your bark. Man, did you love to throw down and argue. But, that’s another post.)

After I started taking classes with you, it didn’t take me long to realize that that the secret to understanding what you were talking about was knowing what you were reading that week. You would basically have one conversation all week long, no matter who you were talking to. I imagine it was bewildering to many of my coworkers when you brought up false-needs, or commodification at our weekly staff meetings, but if people paid close attention, they could almost observe the wheels spinning all week long, as you lived the theorists you were teaching through the practice of our projects. I often explained to people the incestuous nature of my work/school commitments by comparing my situation to a graduate student in the natural sciences. They might spend 40-60 hours a week in a lab, and working for you was about as close as I could imagine to working in a communications lab. I often wondered how many of my cohorts managed to keep up on developments in new media (and many of them certainly did) without the ambient immersion in a practice that exercised and embodied the theories we were reading.

When summer vacation rolled around, you never quit.  I remember how you used to talk about the stretch of time between Sept-May as one long sprint (as long as I’ve known you, you’ve taught at least 2-2 + advising phd students + multiple committees at TC and the J-School, on top of your administrative responsibilities as executive director at CCNMTL and a senior officer in the libraries) , but you didn’t exactly slow down in the summer either. Or, perhaps I should say that you did slow down, but you never stopped teaching and learning.  For at least 3 or 4 summers I participated in “slow reading groups” with you and a few of your dedicated students. We didn’t get any credit for these sessions, and you didn’t get paid. We would sit in your office, and go around the table reading a book out loud, pausing whenever we needed clarification.  And, we often needed clarification. You were convinced that no one was reading anything closely anymore, and that the hundreds of pages that were assigned in courses each week were flying by without students or teachers taking the time to slow down and absorb them.  The second summer we tried this we read Latour’s Politics of Nature, a text we all internalized and will never forget.

You had such a funny relationship with technology. You loved gadgets, but were constantly thwarted and befuddled by them. I wonder how many laptops and phones you lost or broke in the years we have known each other. You never stopped learning, but were suspicious of every new tool that showed up, and the more hype around the tool, the more you growled defensively at it. But often, after months of critiquing and berating something, you would come around and start appreciating it. While some of my coworkers/cohorts seem to have chips on their shoulders about the ineffectual futility of technological interventions, you had an optimistic will that allowed you to wield technology like you wielded the classics. Opportunistically, and instrumentally, in the service of social justice. That was your gig. Relentlessly. Sometimes I wonder if you felt like you had painted yourself into a corner with all of your critiques — like when you whispered quietly to me that you wanted to learn how to use Second Life, without blowing your critical cover.

Last week I ran into an ex-girlfriend that I hadn’t seen in over 10 years. It was nice to reconnect, and in the course of our conversation I realized that we hadn’t spoken since I had started working and studying at Columbia. I was an entirely different person back then, one I barely recognized. Perhaps people return to graduate school in order to change, but true transformations require a relinquishing of your old identity and ego, without a clear idea of what might emerge on the other end. The Judaic tradition has a teaching that anyone who teaches you the alphabet is considered a parent. You literally taught me the alphabet, as we revisited the alphabet as a revolutionary communications technology (via Eric Havelock), and you taught me many other alphabets and languages that gave me access to entire new worlds.  You also invited me into your home, and made me feel like I was part of your family. Most of all, you modeled and embodied an honesty, integrity, and sheer force of will that I am blessed to have intersected.

Safe travels, Frank, and enjoy your vacation.

Love,
/J

“So what?!?” – Wikimedia ’06 Plenary session at Wikimedia ’06 in Cambridge, multimillionaire philanthropist Brewster Kahle presents his vision for the Internet Archive, and Frank steps up for the Q&A.  Classic brilliance.

The Joker’s Detonators

This weekend I participated in a wonderful academic experiment – a conference hosted by the Rutgers Media/Comm program called Extending Play. Thanks to everyone who was involved in making it happen!

The conference invited participants to play with traditional academic conferences, in form and content, and to a large extent, they succeeded. I had a stupid busy weekend, and couldn’t attend as much of this event as I wanted to, but I was there all day on Saturday, and the keynote conversations were refreshingly engaging,  and many of the panelists pushed the boundaries of conventional conference formats.

I’m hoping to circle back and write more reflections about the parts of the conference I attended, but in this post, I want to share my presentation. (It was a difficult presentation for me to make, given the tragedy in Boston last week… but, I think it was appropriate).

What impacts might Free and Open Source technologies have on networked insurgency tactics? How might 3D-printing, open source drones, open source rocket guidance software, and arduinos transform urban guerrilla warfare and pose a serious threat to (inter)national security? While these technologies are typically used for hobbies and play in the western world, their weaponization is an discussion whose ethical urgency needs to be taken up by communities of practice.

The tactics of networked insurgents are evolving at the speed of the internet, and FLOSS communities need to start thinking about strategies to anticipate, and prevent the weaponization of their software. Is the weaponization of FLOSS software intended in Stallman’s software freedoms?  While a minority of free software licenses attempt to prevent violent applications of their software, how should the average software developer think about their responsibilities towards the potential uses of their creations?

Ultra-Paradox

The Israeli elections are over, and it looks like Netanyahu’s “reelection campaign” wasn’t as successful as the last one he staged 4 years ago. A few months ago, in November ’12, I had just returned from visiting Palestine/Israel when the IDF launched an attack against Gaza. Although Palestinian rockets raining down on Israel are nothing new, the new extended range of the Qassam rockets allowed the Gazans to attack new targets. I listened in disbelief as I learned that a few of the missiles hit Jerusalem suburbs. As far as I am aware, the last time Jerusalem was bombed from the air was in 1967, by the Jordanians. And, I’m pretty certain the Old City was off limits. I mean, can you imagine the reactions if one of those Qassams scratched the holy dome of the rock?  Or, Jesus’ tomb, which is down the block?

The only way I have been able to understand these attacks is like an act of self-cutting—driven by utter desperation, isolation, and hopelessness.

From what I could tell, our Gazan (Brethren|Terrorists|Freedom Fighters) were basically lobbing missiles north, without the ability to aim. Humanity has been targeting projectiles for thousands of years, without the assistant of computers. Heck, the study of mechanics and the discovery of the parabolic equation was largely driven by military applications. For example, if you could calculate the rocket’s fuel, the wind speed, and the launch angle, you might be able to more accurately target a rocket. Or, even simpler—have some friends on the ground near the impact site tweet the lat/long coordinates of impact, and then adjust your next shot accordingly. But, we’re living in the 21st century, and the CTOs in silicon valley are playing with toy rockets controlled by open source missile guidance systems, like Altus Metrum. The weaponization of open source is democratizing access to the world’s most advanced killing platforms.

The Gazan militants are likely aware of these techniques, but if they aren’t, a lack of education is surely to blame. Education is a casualty of the occupation, alongside connectivity, mobility, access to water, fuel, electricity, etc. The Gazan militants are labeled terrorists since they kill civilian targets. But, if they can’t aim, they are hardly targeting civilians. The nuttiest part of this equation, is that if you tried to help them learn how to target their weapons, so they could aim at military targets instead of civilian ones, you would be accused of aiding and abetting terrorism. So, you can’t teach them how to not hit civilians.  You can’t help them overcome terrorism.

Adam Curtis, the BBC documentary filmmaker behind The Power of Nightmares and The Century of Self, wrote a recent blog post on this recursive, abusive co-dependency that reads like a dissertation proposal:  Save your Kisses for Me.
Working this out I almost blew a fuse. But, that’s the point. The situation is a paradox. A catch-22. No wonder the conflict seems to be stuck in an infinite loop.

RIP Aaron. You are not alone

The corner of the internet that I hang around in has been mourning all weekend with tributes, eulogies, and heartfelt sharing about the untimely death of Aaron Swartz.

I don’t remember meeting Aaron personally, but I have heard him speak, am friends with many of his friends, and was very aware of his work and activism.

I am furious and sad to hear that he took his own life. I have lost a few friends and relatives to suicide, and years ago wrestled with some of these demons myself. Honestly, I am not sure how I feel about politicizing this moment. There are strong arguments on both sides. Being persecuted by the state is horribly stressful and isolating, and I also feel strongly about many of issues that Aaron advocated for. But, I am concerned about responses that reduce and simplify Aaron’s complex decision. This post about suicide reporting on the internet raises the concern that sensational reporting causes an increase in suicides in the wake of the coverage.

What I want to contribute to this conversation is an important message to any geeks, hackers, or activists that are struggling with isolation, alienation, depression, or even suicidal thoughts. You are not alone. And, sometimes it takes alot of courage to decide to stay alive.

For the past 10 years, radical mental health groups like The Icarus Project have been developing support materials for activists that provide alternative ways of thinking and talking about mental health. Take a peek at their forums, publications, podcasts, documentaries, and more. They have really helped so many people rewrite their own narratives, and connect with others struggling with similar emotions.

In the past year or two especially, I have seen more and more geeks/hackers who are attempting to organize around these issues, eliminate stigma, and provide peer-support outside of the mainstream psychiatric paradigm. Geeks, hackers, and activists are especially suspicious of authority, and habitually question systems of power.  They are justifiably mistrustful of psychiatry, but need a place to turn to for support.

I don’t know the state of all of these projects, but they seem like a good place to pick up the conversation for how can we take better care of each other and provide kind of compassionate support we all need so horrible tragedies like Aaron’s, Ilya’s and countless others can be averted in the future.

  • Blue Hackers is a fledgling community of hackers dealing with depression
  • At HOPE#9 this past summer, there was a 3 hour (!) panel on Geeks and Depression. The notes and slides were posted here.
  • Just last month, at the Chaos Communications Conference (29c3), Violet Blue gave a talk on Hackers as a High-Risk population, and suggested a harm-reduction approach for thinking and talking about these issues.

It feels like there is an important conversation starting to happen here, and not just around free culture and prosecutorial abuse. How can we steer this conversation without reinforcing the stereotypes and stigmas around suicide?

Rainbows have nothing to hide

On my recent journey to the West Bank I learned about a wonderful Muslim holiday called Eid al-Adha.  Eid is a 4 day, family-focused holiday, celebrated with gift-giving and great feasting. The holiday commemorates the binding and non-sacrafice of Ishmael (since, in the Koran, it was Ishmael not Issac who was bound), and the Covenant between Abraham and the Lord.

When I learned about Eid, two questions came to mind:

  1. Why don’t Jews celebrate any holidays commemorating events that occurred in the book of Genesis?  [It is not really surprising that the religion of Moses takes its cue from the book of Exodus, but I found the omission surprising. However, I am not particularly interested in exploring  answers to this question].
  2. Does anyone on this seemingly God forsaken planet remember, never mind commemorate or renew, the covenant between Noah and the Lord?

Remember the story of Noah in the Bible? Though it is taught widely to children everywhere, I’ve been surprised at how the rarely it’s recalled. (Ed. note: In 2014 Darren Aronofsky (!) will be reminding us all how this went down, with Russel Crowe as Noah).

To recap: God commands Noah to build an ark and collect animal couples, 40 days/nights of rain, a raven, three doves, and an olive branch. Remember how it ends? Why are there so many songs about rainbows?

And God said to Noah and to his sons with him, 9 “I now establish My covenant with you and your offspring to come, 10 and with every living thing that is with you — birds, cattle, and every wild beast as well — all that have come out of the ark, every living thing on earth. 11 I will maintain My covenant with you: never again shall all flesh be cut off by the waters of a flood, and never again shall there be a flood to destroy the earth.”

12 God further said, “This is the sign that I set for the covenant between Me and you, and every living creature with you, for all ages to come. 13 I have set My bow in the clouds, and it shall serve as a sign of the covenant between Me and the earth. 14 When I bring clouds over the earth, and the bow appears in the clouds, 15 I will remember My covenant between Me and you and every living creature among all flesh, so that the waters shall never again become a flood to destroy all flesh. 16 When the bow is in the clouds, I will see it and remember the everlasting covenant between God and all living creatures, all flesh that is on earth. 17 That,” God said to Noah, “shall be the sign of the covenant that I have established between Me and all flesh that is on earth.” *

Hmm… Sound relevant?

I just finished reading Imperiled Life: Revolution Against a Climate Catastrophe, and I am feeling the urgency of this calling.

I am thinking about starting a campaign that activates the mass communication networks known as organized religions, by short-circuiting the cognitive dissonance between fundamentalism and climate change denial. I want to invoke the Noahide covenant as an on-ramp to help educate religious folks about climate change, in the hopes of transforming their awareness into intention and action. Let’s help God keep his word, and hold up our end of the Rainbow!

An ambitious goal, to be sure, but we live in dire times. I realize that it might sound like there are logical gaps in this chain of reasoning, but I also believe convincing true believers using scientific reasoning is a dead end. I want to craft a hermeneutic argument, clothed in scripture, to convince the religions of the world to care. I want to turn Earth Day into a religious holiday.

And, I think we might be able to realize (and fund) the first stage of this awareness raising effort through merchandising.  I’m imagining rainbow flags, t-shirts, cups, hats, etc, covered with unifying symbol representing the solidarity of world religions. Something along the lines of Coexist, but more encompassing than just the Abrahamic faiths.  Something closer to the opening image on the World Festival app. Maybe something like this:

So, what url do you like best?  sacredrainbows.org, sacredrainbows.net, or sacredrainbows.us?

Quetzalcoatl and Back Again

It’s nice to be on the spring side of the winter solstice. Farewell, Apocalypse. Nice try.

What a year. In 2012 I occupied — Wall Street, Mental Health, the American Psychiatric Association, and my dissertation. I catalyzed the production and distribution of Mindful Occupation, and helped organize the Icarus Project’s NYC 10 year anniversary event and art show.  And, I was privileged to visit the great Mediterranean capitals — Cairo, Istanbul, Athens, Jerusalem, and Ramallah. All while holding down a full-time job.

Some were not concerned that the world would end on 12/21, but instead, were horrified at the prospect that humanity will continue hurdling forward, business as usual. As many on our planet yearn for unity and the Most Great Peace, and there are hints we might be learning to direct, harness, and measure our collective intentions. But, as mystics have long understood, our collective choices will decide if we converge on a global state of war or peace.

All of my travels this year were transformative and intense, but my October trip to the West Bank was really the culmination of my hero’s journeys. I travelled there for the final stage of the project we began 2 years ago, trying to help Palestinian educators develop their capacity to improve their teaching excellence (Towards the (educational) liberation of Palestine, Dispatches from Cairo: The Raw Data, If I forget you, O Palestine…).

I travelled with my friend and colleague, Mark Phillipson.  Together we delivered a keynote speech at the Palestine Technical University — Kadoorie, in TulKarm, and taught workshops on cutting edge, video-based, teacher training and assessment techniques.  The PTUK team officially opened the Multimedia and Educational Resources Center (MERC), and were raring to go. The MERC center is an impressive accomplishment, but I also experienced great sadness and disappointment at the unsustainability of the development grant. Just as we were finally getting some traction, the funding was finished.  I understood that unsustainability is a common failure of projects like this, but the firsthand experience felt worse than any theoretical critique.

My boss/advisor/mentor, Frank Moretti, was unable to make the trip this Fall, but recorded a video introduction to our keynote that set the stage for the rest of my trip. The introduction started out cordial and friendly, but 3/4 of the way through, Frank lobbed a handgranade was starker and sterner than any Mayan prophesy. He warns that unless educators incorporate the twin themes of environmental catastrophe and nuclear war into every stage of curriculum we are headed for a “collective calamity”:

This warning framed the rest of my trip, and the rest of the year. I’m still unpacking the fallout.

Hide your kids

 

It’s back to school season, and if you’ve glanced up from your smartphone while walking the streets of New York City, you are sure to have noticed a new campaign that is sweeping the city’s billboards and phone booths.

 

Children’s Mental Health MATTERS

Where Science Meets Hope for Children’s Mental Health

 

Who could possibly object to children’s health and well being?

The Child Mind Institute, whose “Billboard is now at Penn Station!” is a recently founded non-profit “committed to finding more effective treatments for childhood psychiatric and learning disorders, building the science of healthy brain development, and empowering children and their families with help, hope, and answers.”.  According to their website, they don’t accept funding directly from pharmaceutical companies. Anyone want to help me start cross-checking Pharma’s ties to their staff and board?

In a gushing profile of the organization and its founder, Dr. Harold Koplewicz, the New York Times reported last summer that they are awash in millions of dollars of funding, have 14 clinicians on staff, and a former editor of the New York magazine is editing their website. Koplewicz is also the go-to doc for helping celebrities and the 1% “manage” their children. The story glosses over Koplewicz’s messy departure from NYU to start the Child Mind Institute.

“[Koplewicz’s] main mission in life, he contended, is to remove any stigma from mental illness among children and teenagers, make it merely something to be managed and overcome as it was with dyslexia or attention deficit disorder before it.” In his critique of Marcia Angell’s two-part series in the New York Review of Books on the epidemic of mental illness Koplewicz stakes out his position clearly: “In the meantime, we have patients, in our case children and adolescents, who desperately need help. These children may be out of control, overwhelmed by anxiety, dangerously aggressive, disorganized in their communication, floundering in school. We need to help them. Medications, often along with behavioral therapy, can have a transformative effect.” These are the symptoms that Koplewicz wants concerned parents to be vigilant about patrolling: Child Mind Institute Symptom Checker.

To me, Koplewicz reads like a raving megalomaniac, and his devotion and conviction are more frightening than the fictitious evil masterminds he claims are posited by Psychiatry’s critics. I get the sense that he genuinely believes his own spin. He worships at the alter of “objectivity”—”We would like to see objective research catch up with the clinical realities but can’t wait until that happens. Furthermore, falling back on pure non-pharmacological treatment is not the better alternative, since these treatments have rarely undergone objective evaluation.”—and the Child Mind Institute is outfitted with “the latest in brain imaging technology”. Koplewicz wields a formidable rhetoric, but is almost a caricature of the scientific realists in the Science Wars.

This post raises more questions than it answers. Who is funding the Child Mind Institute? Why now? How can organizations developing compassionate languages to describe mental diversity and difference, like The Icarus Project, respond to these campaigns? What roles do “objectivity” and “risk aversion” have in shaping the dynamics of this controversy? Should anything be stigmatized?

UPDATE 4/22/2013: I  tweeted about this ages ago, but realized that the following tidbit never made it into this post.

If you visit the wonderful Drug Industry Document Archive and search for ‘Koplewicz’, you will find that he was one of the co-authors on the now infamous Paxil 329 study that cost Glaxo Smith Klein $3 BILLION in settlements in 2012.

The Paxil 329 study tried to cover up the finding that not only does Paxil not work in children, but that it makes them more suicidal than a sugar pill did. The Dept of Justice found the study to be misleading and fraudulent.  I am pretty sure that the study was ghost written, but I think that makes his credibility even worse.

See also:

Bossewitch, Jonah (2011). Pediatric Bipolar and the Media of Madness “Drugs and Media: New Perspectives On Communication Consumption and Consciousness”, eds. MacDougall, R. C., New York : Continuum: 2011

Special thanks to Dyan Neary for helping out on this post.

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