Dangerousgifts on Alchemical Musings

Hippocratic hypocrisy

Thu, 12 Dec 2013 01:47:39 +0000

When I graduated from Teachers College in ‘07, I donned the goofy ceremonial robes and walked with my classmates at the university-wide commencement. I distinctly remember my astonishment when I heard the medical graduates recite the Hippocratic oath, right there, for all of us to witness. I remember thinking to myself that other professionals should be required to recite oaths too, as lawyers, teachers, journalists, and others all have the power to do great harm, but I suppose that medicine still occupies a unique place, as the power to heal is synonymous with the power to kill. I have arrived at a point in my dissertation research where I am now convinced that the psychiatric-pharmaceutical complex is in violation of the Hippocratic oath. I realize that this is a heavy accusation to make, but I now believe that the field has gone beyond simple, or even gross negligence, and has crossed the line into willful harm.

DSM-5 vs. NIMH: kill-shots and social constructs

Mon, 03 Jun 2013 00:25:32 +0000

Last month the DSM-5 finally launched at the American Psychiatric Association conference. After 13 years and multiple delays, you can now pre-order your copy at Amazon (list price: $150), or just leave a helpful comment. The DSM-5 had been surrounded by controversy, and not just by the usual suspects. Allen Frances, the chairman of the DSM-IV task force, just published a scathing critique of the processes and outcomes of the DSM-5 efforts: Saving Normal: An Insider’s Revolt Against Out-of-Control Psychiatric Diagnosis, DSM-5, Big Pharma, and the Medicalization of Ordinary Life. Frances has been sounding the alarm about DSM-5 for over a year, raising concerns over the current committee’s secretive methods, conflicts of interest, expansive diagnostic inflation, and the reduction in reliability (the odds of two doctors agreeing on a diagnosis) that DSM-5. Over 50 Mental Health organizations and almost 15k people signed a petition demanding reform of the DMS-5 drafts. Although this scale of controversy would be scandalous in many fields, the APA barely flinched. The DSM-5 task force moved some of the most troubling diagnoses into the appendix, renamed a few others, skipped a round of efficacy trials to meet their deadline, and otherwise proceeded with business as usual. I have to say my jaw dropped when I learned that the National Institute of Mental Health (NIMH), and it’s $1.5B/year of funding, was “re-orienting its research away from DSM categories[!]”. The official NIMH announcement, Transforming Diagnosis, posted by their director Thomas Insel on April 29th, was picked up by a wide range of science media (NYTimes, Koplewicz @ The Huffington Post, Chris Lane @ Psychology Today, Psych Central) with headlines such as “NIMH Withdraws Support for DSM-5” and analysis that this was a “kill-shot” for DSM-5. What struck me as most shocking was that the NIMH basically came out and said that the the Mental Illnesses defined in the DSM are social constructs - “the DSM diagnoses are based on a consensus about clusters of clinical symptoms, not any objective laboratory measure.” Ironically, the anti-psychiatrist’s arguments have prevailed, although for the wrong reasons. As I interpret this statement, NIMH isn’t denying the existence of mental illness, just our current ability to agree on its nature and manifestations. But, yes, the current definitions are social constructs and continue to defy attempts at validity. Ha! But, before anyone gets too excited, what the NIMH proposes may turn out to be scarier than the system in place. This research is representative of the direction that the NIMH is heading: Suicidal behavior is a disease. Here, disorders will be sliced and diced into their constituent elements, which conform more readily to the instruments and models that scientists (neurobiologists and geneticists) already have at their disposal. I’ve been convinced for a while that within the next 5-10 years the Pharma-Industrial complex was going to invest enough research money to find a definitive neuro-imaging/molecular/genetic/biochemical marker for mental illness (that is, once the marker cast a wide enough net). However, I wasn’t expecting them to turn the tables and redefine mental illness according to what they could already test. Pretty sneaky. The saddest part of this whole debacle is that instead of seizing this moment of crisis as an occasion to bring together disparate stakeholders - from patients, to consumers, to survivors, to advocates, to caregivers across a range of backgrounds - and work together to develop a new language and paradigm for understanding human suffering and emotional crisis, the NIMH has doubled down on scientific authority. Soon they will be short-circuiting all debate by pointing at pretty false-color pictures and lab results. There will always be a value judgement when evaluating the boundaries of normal experience/behavior, and no scientific instrument will ever be able to tell us when someone’s experience/behavior is deviant, without human interpretation. As the disability right’s movement says: Nothing about us, without us. Somehow, for all of the NIMH’s noble intentions, I have a bad feeling that the treatment side of mental health care is poised to become more oppressive. We’ll likely continue to see the growth of anti-psychotics for everyone, and the pre-cog, pathologizing of risk through predictive and preventative care that will explosively expand the diagnostic reach. This conversation just took a sharp turn past the rhetoric of the last few decades. I hope the psychiatric resistance is following along closely, and updating their arguments accordingly.

RIP Aaron. You are not alone

Mon, 14 Jan 2013 01:03:38 +0000

The corner of the internet that I hang around in has been mourning all weekend with tributes, eulogies, and heartfelt sharing about the untimely death of Aaron Swartz. I don’t remember meeting Aaron personally, but I have heard him speak, am friends with many of his friends, and was very aware of his work and activism. I am furious and sad to hear that he took his own life. I have lost a few friends and relatives to suicide, and years ago wrestled with some of these demons myself. Honestly, I am not sure how I feel about politicizing this moment. There are strong arguments on both sides. Being persecuted by the state is horribly stressful and isolating, and I also feel strongly about many of issues that Aaron advocated for. But, I am concerned about responses that reduce and simplify Aaron’s complex decision. This post about suicide reporting on the internet raises the concern that sensational reporting causes an increase in suicides in the wake of the coverage. What I want to contribute to this conversation is an important message to any geeks, hackers, or activists that are struggling with isolation, alienation, depression, or even suicidal thoughts. You are not alone. And, sometimes it takes alot of courage to decide to stay alive. For the past 10 years, radical mental health groups like The Icarus Project have been developing support materials for activists that provide alternative ways of thinking and talking about mental health. Take a peek at their forums, publications, podcasts, documentaries, and more. They have really helped so many people rewrite their own narratives, and connect with others struggling with similar emotions. In the past year or two especially, I have seen more and more geeks/hackers who are attempting to organize around these issues, eliminate stigma, and provide peer-support outside of the mainstream psychiatric paradigm. Geeks, hackers, and activists are especially suspicious of authority, and habitually question systems of power. They are justifiably mistrustful of psychiatry, but need a place to turn to for support. I don’t know the state of all of these projects, but they seem like a good place to pick up the conversation for how can we take better care of each other and provide kind of compassionate support we all need so horrible tragedies like Aaron’s, Ilya’s and countless others can be averted in the future.

Hide your kids

Tue, 04 Sep 2012 00:37:17 +0000

It’s back to school season, and if you’ve glanced up from your smartphone while walking the streets of New York City, you are sure to have noticed a new campaign that is sweeping the city’s billboards and phone booths.

Children’s Mental Health MATTERS

Where Science Meets Hope for Children’s Mental Health

Who could possibly object to children’s health and well being? The Child Mind Institute, whose “Billboard is now at Penn Station!” is a recently founded non-profit “committed to finding more effective treatments for childhood psychiatric and learning disorders, building the science of healthy brain development, and empowering children and their families with help, hope, and answers.". According to their website, they don’t accept funding directly from pharmaceutical companies. Anyone want to help me start cross-checking Pharma’s ties to their staff and board? In a gushing profile of the organization and its founder, Dr. Harold Koplewicz, the New York Times reported last summer that they are awash in millions of dollars of funding, have 14 clinicians on staff, and a former editor of the New York magazine is editing their website. Koplewicz is also the go-to doc for helping celebrities and the 1% “manage” their children. The story glosses over Koplewicz’s messy departure from NYU to start the Child Mind Institute. “[Koplewicz’s] main mission in life, he contended, is to remove any stigma from mental illness among children and teenagers, make it merely something to be managed and overcome as it was with dyslexia or attention deficit disorder before it.” In his critique of Marcia Angell’s two-part series in the New York Review of Books on the epidemic of mental illness Koplewicz stakes out his position clearly: “In the meantime, we have patients, in our case children and adolescents, who desperately need help. These children may be out of control, overwhelmed by anxiety, dangerously aggressive, disorganized in their communication, floundering in school. We need to help them. Medications, often along with behavioral therapy, can have a transformative effect.” These are the symptoms that Koplewicz wants concerned parents to be vigilant about patrolling: Child Mind Institute Symptom Checker. To me, Koplewicz reads like a raving megalomaniac, and his devotion and conviction are more frightening than the fictitious evil masterminds he claims are posited by Psychiatry’s critics. I get the sense that he genuinely believes his own spin. He worships at the alter of “objectivity”—“We would like to see objective research catch up with the clinical realities but can’t wait until that happens. Furthermore, falling back on pure non-pharmacological treatment is not the better alternative, since these treatments have rarely undergone objective evaluation."—and the Child Mind Institute is outfitted with “the latest in brain imaging technology”. Koplewicz wields a formidable rhetoric, but is almost a caricature of the scientific realists in the Science Wars. This post raises more questions than it answers. Who is funding the Child Mind Institute? Why now? How can organizations developing compassionate languages to describe mental diversity and difference, like The Icarus Project, respond to these campaigns? What roles do “objectivity” and “risk aversion” have in shaping the dynamics of this controversy? Should anything be stigmatized? UPDATE 4/22/2013: I tweeted about this ages ago, but realized that the following tidbit never made it into this post. If you visit the wonderful Drug Industry Document Archive and search for ‘Koplewicz’, you will find that he was one of the co-authors on the now infamous Paxil 329 study that cost Glaxo Smith Klein $3 BILLION in settlements in 2012. The Paxil 329 study tried to cover up the finding that not only does Paxil not work in children, but that it makes them more suicidal than a sugar pill did. The Dept of Justice found the study to be misleading and fraudulent. I am pretty sure that the study was ghost written, but I think that makes his credibility even worse. See also: Bossewitch, Jonah (2011). Pediatric Bipolar and the Media of Madness “Drugs and Media: New Perspectives On Communication Consumption and Consciousness”, eds. MacDougall, R. C., New York : Continuum: 2011 Special thanks to Dyan Neary for helping out on this post.

#OccupyAPA: Mad Power, Mad Pride, Mad Action

Mon, 21 May 2012 00:01:59 +0000

Last weekend I went down to Philly to Occupy the American Psychiatric Association’s yearly conference (#OccupyAPA). I joined the protests on Saturday, attended the APA on Sunday, and participated in the Radical Caucus, hosted by a group of psychiatrists attending the conference on Sunday night. The weekend was overflowing with information and emotion, and I when I finishing unpacking it all I might just have a dissertation (or, at least a fat chapter). This year’s APA was especially controversial since the DSM5 is scheduled to be published in 2013. Over a decade in production, and already delayed more than once, the DSM5 is, in a word, disastrous. Many psychiatrists, including the lead author of DMS-IV, have spoken out vehemently against both the processes and outcomes of DSM5. [CALL TO ACTION: The final round of public comments on DSM5 is now open, until June 15th, 2012.] The controversies around DSM-5 coupled with the energy of Occupy Wall Street, brought activists and the media out in force. The Philadelphia Inquirer ran a front page story on the protests (Former patients protest psychiatric convention), New Scientist covered the protests alongside their DSM coverage (Label jars not people), The Grey Lady covered and opined the DSM disaster (though not the protests), the BBC was filming, NPR was recording, and at least 2 documentary film crews (Cause of Death: Unknown), and a multitude of citizen journalists captured and reported on the actions. Saturday morning kicked off at Quaker Friend’s Center, with a powerful lineup of psychiatric survivors firing up the protesters with speeches, songs, and changes. Hundreds of protestors marched through the streets of Philly to the main convention center, many wearing psychopharmacomania t-shirts, and holding creatively maladjusted signs. The protest culminated in a label rip, staged outside of the main convention center (The Alchemist makes an appearance at 2:25, warning that psychiatry is a threat to itself and to others).: The Icarus Project represented, and we were thrilled to distribute physical copies of the eagerly anticipated Mindful Occupation to protestors, psychiatrists, and the media. The protests were a rush, but for me, the surprise thrill was gaining admission to the APA conference itself on Sunday. I attended a few talks and a poster session, irrefutably detailing and confirming my research and predictions. Then I hit paydirt. The vendor exhibition hall. HOLY FUCK. Highlights included: Future Blockbuster? Anti-psychotic action in 3D: A live psychiatrist, hired by AstraZeneka, delivering their powerpoint presentation (she only squirmed a little when I asked her if this was the drug that killed 3-year old Rebecca Reilly): and devices that only psychiatry can dream up uses for: The Radical Caucus deserves a follow-up post of of its own. For starters, Brad Lewis’ brilliant breakdown seamlessly applies the hard-fought lessons of academic theory to the trenches of emotionally-loaded, real-life conflict. I have much more to say about this meeting, but first I need to track down who swallowed the comment that I posted in response to Brad’s post ;-). For now, I’ll leave you with a teaser for next year’s APA: “Pursuing Wellness Across the Lifespan” - I guess that covers kids, the elderly, vets, prisoners, pregnant women, and whoever else is ensnared by DSM-5’s diagnostic nets (including the appendix).

Last Call

Sun, 19 Feb 2012 01:44:04 +0000

Our Kickstarter campaign to fund the publication of Mindful Occupation: Rising up Without Burning Out is in full swing. We have made our financial goal (w00t!), and all additional funds raised will go towards additional printings. Thanks to everyone who contributed and helped spread the word. Let’s finish this campaign with a bang. Please share widely: http://kck.st/yAmbya

A guide for participants in the occupy movement to strengthen our psychic, soulful and heartfelt contributions. #mutualaid #peersupport

Promissory Notes

Wed, 01 Feb 2012 01:34:39 +0000

My friend Dr. Rasmus Nielson sends me the best leads. Or, the worst ones, considering they are irresistible calls to action. He sent me this one days before it was due, and I scrambled to pull-off this abstract over the weekend. Below is the call for papers, and my response. Now all I need to do is deliver on the promissory note I just wrote sometime in the next 3 months. Thanks Rasmus. ;-)

Mindful Occupation: Part II

Mon, 02 Jan 2012 20:29:26 +0000

In a previous post, I described my initial involvement with #occupymentalhealth and birth of our forthcoming zine Mindful Occupation: Rising Up Without Burning Out. I alluded to the heated debates that emerged around our work on this zine and my direct participation in the local NYC ‘Support’ working group. It was through these deliberative processes and exchanges that I rediscovered the promise Occupy’s discursive ‘public space’. As a researcher of the radical mental health movement, I recognized a unique opportunity in Liberty Park to explore the rhetoric around mental health, in context. I was hopeful that the activists involved in supporting the health and safety of the #OWS community would be critical of mainstream corporate medical models, and would be very receptive to alternative perspectives and language. The discussions that ensued were provocative and transformative, and the experiences have helped me crystallize future directions in my research. As the occupiers settled into Liberty Park the task of self-governance grew in scale, with complexity that rivaled running a small town. Dozens of working groups sprung up to meet the challenge of non-hierarchical, self-governance – many committed to modeling the kind of society they dreamt of living in, rather than replicating existing broken forms. The working groups took responsibility for the protester’s basic human needs - food, shelter, sanitation, safety, spirituality - as well as organizing, maintaining, and sustaining the occupation, over the short/medium/long term. A number of working groups took up the challenge of maintaining the heath and well-being of the protesters, and in New York City these groups organized themselves into the Safety Cluster. The Safety Cluster included people committed to mediation, non-violent communication, security and deescalation, as well as people committed to anti-oppression and reducing sexual harassment (the Safer Spaces working group). Additionally, there was a working group calling itself ‘Support’ that had been operating as a subgroup of the Medic working group. The Support group was comprised primarily of mental health professionals - social workers, chaplains, psychiatrists, and a few non-traditional emotional support practitioners. Together, the safety cluster developed protocols for handling interpersonal conflicts in the park, and organized nightly “community watch” shifts, where members of the community organized to support protesters, and identify and defuse conflict. While some of my fellow collaborators on the Mindful Occupation zine felt more comfortable working with the Safer Spaces working group, I realized that the best education happens outside of our comfort zones. Tension and conflict are inherent properties of activism, as activists attempt to question and dislodge accepted norms. Initially, I thought that this particular group of mental health professionals would be very receptive to questioning psychiatry’s mainstream medical models. These individuals were volunteering their time and energy at #OWS. As it turned out, although I found many sympathizers and allies among the Support group, I was stunned by the systemic efforts to silence and marginalize voices from outside the mainstream. While many of the Support volunteers were fully engaged in critiquing social and economic injustice in the world at large, few seemed prepared to apply a self-reflective critique of their entrenched beliefs and professional norms. Through countless interminable meetings and mailings, I witnessed efforts to exclude the voices of those without formal expertise and training. Voices outside of the mainstream had difficulty getting their issues on the meeting agenda and were actively excluded from some events and conversations. I remained committed to working with the Support group, although I did not always feel welcome. Within the Support group, proposals were raised for the “community watch” volunteers to wear identifying badges which included their profession (e.g. social worker, chaplain, psychiatrist) and license number, and for an active recruitment of more psychiatrists to patrol Liberty park. Some of the medics insisted on “clearing” all of their patients medically, before turning them over to social and emotional support. Sounds reasonable until you begin to question what’s medical, and more importantly, what’s not? A head trauma might be medical, but what about a chemical imbalance? If all conditions are ‘medical’, then all authority around health and well being has been effectively ceded to a narrow range of medical specialists. In subtler ways, i believe that some of the work in this group contributed to an atmosphere of fear and control in the park. Support’s role-plays often focused on the most violent scenarios, invoking the stereotype of the knife-wielding psychotic, and priming those on community watch to bring this anxiety with them throughout their encounters in the park. While the violence and sexual harassment in the park were unfortunately very real, some of the efforts to prevent these behaviors may have exacerbated them. I witnessed that the providers of mental health services, with rare exceptions, found it incredibly difficult to listen to the recipients of their services. To ask and solicit opinions and stories, and incorporate their experience and judgment into the congress of their decision making. I developed fresh insights into radical mental health through these encounters, that opened my eyes to much of what I had grown to take for granted. I learned that radical mental health has less to do with any particular dogmatic position – around hospitalization, medication, coercion, or diagnoses – and everything to do with authority and knowledge production. I learned that it is hard to find a proposition more radical than the disability rights mantra - Nothing about us without us! #OccupyAuthority

Mindful Occupation: Part I

Thu, 08 Dec 2011 00:59:32 +0000

On September 17th 2011, sleeping giants stirred as the perception of social and and economic injustice in the US finally crossed a critical threshold. And the people spoke. During the first week or two of the Occupation of Zuccotti park I was following along closely, but not yet fully engaged or plugged in. The movement erupted at the beginning of the semester, just as a good friend and I were embarking on a study of digital activism and collective action in the 21st Century. #Occupy quickly became both a primary source and case study as we scrambled to track the tools and tactics that were rapidly deployed. Within days the movement launched multiple web platforms, was taking online donations, was broadcasting a 24-hour streaming video, and started publishing a broadsheet newspaper. Protesters were sharing and exchanging citizen-generated-multimedia-speech using services distributed across the internet, and organizing themselves and their expressions around shared tags. The mainstream media disgraced itself as one of the first (genuine) networked-grassroots movement redefined activism by breeding wikis and folksonomies, with Blue Stockings and Indymedia. Public Space: The Final Frontier The protester’s literal occupation of space quickly went metaphorical, as everything from yoga to religion were soon “occupied.” At one point I came across a call to #occupypsychiatry, although no one seemed to know exactly what that meant. By that point many activist groups had descended on the park, and were tabling, distributing pamphlets, and competing to get their messages out while the media’s spotlight was shining brightly in their vicinity. In the early days of the occupation, while the weather was still mild, Zuccotti was a cross between a party and a seminar. Epic discussions around substantive issues sprung from every flagstone, and the best of Zuccotti suggested what a university could and should be. The occupiers rediscovered public space, and honest-to-goodness publics were formed. It occurred to me that, far more important than any message that #occupy might broadcast were the internal dialogues and communications between and among activists. Especially in these early, fragile stages, teach-ins and skill shares helped forge the alliances and friendships that would propel the movement through the winter and beyond. One of the nights in the park I found myself in a conversation with someone from the sanitation working group, and was struck by the humility of someone focusing their energy on sustaining the community instead of clamoring to be heard by the rest of the world. Through some of the mad pride networks I am connected to, I started hearing stories about protester burnout and emotional crisis at the occupations. Frayed Edges Given the exacerbating conditions - lack of sleep, poor nutrition, exposure to the elements, and don’t forget the police brutality - it is unsurprising there were many frayed edges amongst the protesters. Although the movement had scorned resolving conflicts by turning to the criminal justice system, it had not formed an analogous consensus about resolving emotional crises by turning to the psychiatric system. Around the country reports of forced hospitalization (and medication) emerged, and people kept reaching out for materials that offered alternative perspectives towards handling emotional trauma and navigating crises. Over the summer I had been been working towards setting up on-demand publishing solutions for some of The Icarus Project’s publications. I had spent months trying to track down original indesign files, fonts, and assets, in order to recreate these publications according to the specifications the ondemand publishers mandated. In early October I attended the provocative Mobility Shifts conferences on digital learning, and attended a workshop on the Booki software that explained the practice of book sprints. Booki is essentially a wiki platform that was designed to support collaborative book authoring. The application supports chapters, tables of contents, and pagination, and pumps-out ebooks and print-ready pdfs. [In the course of this project I have learned a lot about digital publishing and the future of open zines, but I’ll save those thoughts for another post.] Another good friend of mine was also in the midst of working on an #Occupy pamphlet, The 99%’s Guide to the Current Clusterf#*k, and that night something clicked. I imagined working together with radical mental health activist to remix a zine (aka pamphlet) that would present alternative perspectives on activism and mental health. I got really excited about a concrete way to contribute to the occupation. I bounced the idea off of some friends and we were all really jazzed about the project. That night, Mindful Occupation: Rising up Without Burning Out was conceived. [to be continued]

That way madness lies

Mon, 10 Jan 2011 01:11:27 +0000

Bossewitch, J. (2010). Pediatric Bipolar and the Media of Madness. Ethical Human Psychology and Psychiatry, 12(3), 254-268. doi: 10.1891/1559-4343.12.3.254 I am finally published in a peer-reviewed journal! Ethical Human Psychology and Psychiatry (available for purchase here - but my cut is exactly 0%). I wasn’t expecting much, and it’s mildly anti-climactic, but I have heard from a few people I never would have communicated with otherwise, and worked really hard to polish up this paper. Anyway, now its traditionally citable, which still means something (for the next few years, at least). This paper is at least 2 years in the making. It began when Rasmus Nielsen forwarded me a call for papers about drugs as a form of media for NCA ‘09, and I participated in a panel organised by Robert MacDougall (my slides). Around the same time as NCA, I also attended ICSPP and had the pleasure of meeting James Tucker and Peter Breggin. This meeting eventually led to my submission to EHPP - a journal that typically publishes articles by and for psychologists, psychiatrists, and social workers. I was thrilled to help bring a dash of media and communications theory/research to that audience. Special thanks to Annie Robinson, Sascha Scatter, Bonfire Madigan, Brad Lewis, Biella Coleman, Philip Dawdy, Nicholas Mirzoeff, Julia Sonnevend, Ben Peters, and the Icarus Project for ideas, inspiration, and edits. I have also reworked the main arguments in this essay into a chapter in the upcoming: Drugs & Media: New Perspectives on Communication, Consumption and Consciousness (edited by Robert C. MacDougall). I even worked on a McLuhanesque Tetrad around Prodromal diganoses (a.k.a. Psychotic Risk Syndrome). Unfortunately, I was unable to convince Springer to go open access with my paper, but I tried and was able to deposit an open-access pre-print in the Columbia institutional repository, and also have a pre-print available here. If enough people make noise about open access, I hope the editors and publishers will eventually start to get the idea. The issues raised in this paper are beginning to percolate into the mainstream. Last month Harpers published a (flawed) long piece on predictive diagnoses: Which way madness lies: Can psychosis be prevented? Wired just ran a great piece on the backlash against DSM5, especially Psychotic Risk Syndrome, by one of the DSM IV contributors: Inside the Battle to Define Mental Illness. A good friend of mine from the Journalism school also just produced an investigative short-documentary on antipsychotics use among foster home children that just aired this weekend on PBS: The Watch List: The medication of foster children. Finally, Crooked Beauty is coming to town next month for the 3rd annual Reelabilities Film Fest - c’mon out to the launch party or one of the screenings: Thursday 02/03/2011 1:00pm JCC of Mid-Westchester Friday 02/04/2011 1:30pm Bellevue Hospital Center Friday 02/04/2011 6:00pm New York City College of Technology Saturday 02/05/2011 7:00pm The JCC in Manhattan Monday 02/07/2011 6:30pm Solomon R. Guggenheim Museum Tuesday 02/08/2011 7:00pm JCC of Staten Island It’s going to be a great year.

Memory Leaks

Wed, 08 Dec 2010 01:37:23 +0000

WWIII - A TV guerrilla war with no division between civil and military fronts.

Marshall McLuhan *

As you enjoy the Wikileaks reality show circus, please remember to support to the Bradley Manning defense fund. This week’s drama has been riveting and surreal. For years I have been describing the era we are embarking on as the End of Forgetting, and imagining the repercussions of this transformation on the fabric of social life. But my relationship with this saga goes well beyond the theoretical and is much more personal. In December 2006*—post-Diebold memos and, synchronously, within weeks prior to Wikileaks’ launch—I began researching the ZyprexaKills campaign (slides), a whistleblowing action implicating the drug company Eli Lilly which soon became the EFF’s first wiki case. That case was a significant milestone in life. The experience was a crash course in First Amendment Law, exposed me to the hybrid dynamics of new and traditional media, prepared me for epocal epistemic shifts, and confirmed the power of my information flow models. On the ZyprexaKills case no one wanted to be forgotten more than the anonymous John Doe, and Eli Lilly undoubtedly wishes the world would forget that they marketed Zyprexa off-label to children and the elderly, even though their executives knew Zyprexa causes diabetes. Which brings us to today. I am amazed at the wide speculation across the mainstream press around Assange’s motives when his own writings are widely available. Apparently, we are still transitioning to the age of Scientific Journalism Assange dreams about. Bloggers and tweeters have finally helped mainstream news outlets pick up the story–as Todd Gitlin writes, we should “Credit him with a theory”. The potential fallout of the leaks goes well beyond the substantive contents of any particular document. To understand the potential impact of this communication its important to consider the different types of messages conveyed to various receivers. Some commentators, like Umberto Eco, have taken up the message of the medium itself—What do leaks of this type communicate? Beyond any specific cable or document, what messages do the leaks send, and to whom? I don’t think the Wikileaks collaborators have much faith in the US political processes. Like the Tea Party, I imagine they aim to usurp the agenda and change the language of the conversation itself. I doubt they are overly preoccupied with any particular exchange. Some have alleged a preventative coup against Hillary, but I think we need to read this in a more global context. Beyond the narrow lens of partisan, or even geo-politics, there cultural and ideological battles are raging. Wikileaks’ actions model and embody the maturing, politically conscious, hacker ethic—*and their actions alter people’s conception of the real and the possible. Their actions are floating and actualizing crucial thought experiments just in time for the showdowns around net neutrality, kill switches, and the future of journalism and the Internet. All the more reason why They have to try to make an example here. Is the US Govt already caught in a chinese finger trap? Whatever the outcome, at least its different. Last week’s media-policy talks at the Columbia J-school (Wu/John and Copps) articulated the historic challenges we face at this critical juncture in order to avoid the fate of all previous media revolutions. At this point I’m willing to try just about anything that might snap us out of the repetition compulsion of the 20th century. But, I like backgammon better than chess ;-) BTW - I love that my fact that my idea for this post’s image had already been drawn, and was discoverable within 10 second search. Long live the open, neutral, unkill-switchable, World Wide Web! Ongoing collection of my favorite Wikileaks coverage here.

Pick a world... any world...

Tue, 06 Jul 2010 00:32:37 +0000

Last week I attended the second half of the US Social Forum - not exactly a conference, but more of a convergence or a process, where 20,000 people gathered in Detroit to build coalitions, alliances, and movements. The World Social Forum began as a response to the World Economic Forum - Why should the power elite be the only ones planning humanity’s future?!? The USSF web site and the People’s Media Center (made possible by some righteous radical techies, the Design Action Collective, riseup.net, and May First/People Link) should give you a flavor of what the event was all about. But, be aware that the streaming video and social media barely scratches the surface of the experience. The forum is organized around 2-hour long workshops, and over 100, 4-hour long People’s Movement Assembly’s. The sessions were in depth and quite intensive. The format is designed to encourage small group interactions and for people to connect and get to know each other. The assemblies were geared around crafting resolutions and actions - I attended parts of the transformative justice and healing PMA, and it was really well facilitated. During the closing ceremony the assemblies synthesized their resolutions, scheduled actions, and asked for commitments of solidarity around their issues. I don’t think that this forum represents the Left’s answer to the Tea Party, but I did gain a much better appreciation for the scope of issues comprising The Agenda(s). And, considering that anyone passionate about an issue was welcome to participate, the assemblies offered an authentic glimpse into everyone’s priorities. It felt like a determined effort to take things into account, and put them in order. Here are some of the resolutions that emerged from the Progressive Techie Congress Principles and the Transformative Justice and Healing assembly. Collective Liberation and Radical Mental Health The main draw for me to the conference were the Icarus Project workshops and the convergence of Icaristas, in person. We took over and transformed a house in a Detroit suburb, and mad dreaming and plotting ensued. The place was quickly transformed into a safe space for people to brilliantly navigate the madness of the forums, and it was quite amazing to spend quality time, face to face, with friends and allies. I gravitated to the heath tracks, taking up issue of self-care, mutual aid, and wellness. I also caught some great music, ate some amazing homemade food (and not bombs), visited some incredible collective living spaces, and was pretty inspired by everyone who cared and showed up. This Icarus workshop I attended (there was another that I missed, plus a screening of Crooked Beauty) was eagerly anticipated and well attended - the participants were open and receptive to the core messages, and there was a palpable desire to embrace these issues locally. The session leaders shared their personal stories and modeled peer-support as we broke into groups (photos, highlight reel to be posted shortly). People shared details of their individual and organizational neuro-diversity and how dysfunctional feedback loops undermine many organizing efforts. The relationship between personal and collective liberation emerged from the workshop and will travel far beyond Detroit’s (shrinking) city limits. Detroit is pretty beat up - we stayed two blocks away from a refinery that belched flames into the night sky - but there are some wonderful people and projects that were really cool to experience. It’s also the only city I have ever been to that has a monument to organized labor. If I can’t dance, I don’t want to be part of your revolution - Emma Goldman, Radical Feminist

Mad Men, Women, and Children

Sun, 23 Aug 2009 21:53:45 +0000

This season Fox premiered a new television series called Mental (this post has nothing to do w/ AMC’s fabulous Mad Men):

a medical mystery drama featuring Dr. Jack Gallagher, a radically unorthodox psychiatrist who becomes Director of Mental Health Services at a Los Angeles hospital where he takes on patients battling unknown, misunderstood and often misdiagnosed psychiatric conditions. Dr. Gallagher delves inside their minds to gain a true understanding of who his patients are, allowing him to uncover what might be the key to their long-term recovery.

The Remover of Obstacles

Sun, 26 Jul 2009 23:56:43 +0000

On last weekend’s visit to the Shivananda ashram I chanted away life’s worries while imagining an elephant effortlessly clearing obstacles from its path. Om gam ganapataye namaha! [*] The elephants returned this weekend on my visit to Boston. I spent a wonderful afternoon biking around the city, inhaling the streets, waterways, and parks and internalizing its expanse. I visited the ICA, a great new museum designed by the same crew that just finished New York’s great new High Line park. The main attraction at the ICA was the Shepard Fairey exhibit, but I was much more drawn to the “Acting Out: Social Experiments in Video”

Pathological Soothsayers

Mon, 30 Mar 2009 23:30:42 +0000

A recent post at Furious Seasons on the spooky future of psychiatry prompted me to dig a little deeper into the origins of prodromal diagnoses. A prodrome is “a symptom or group of symptoms that appears shortly before an acute attack of illness. The term comes from a Greek word that means “running ahead of."” A spooky emerging trend in clinical psychiatry is the appropriation of this concept under the paradigm of “early intervention in psychosis” for “at risk” patients. Psychiatrists are preventively diagnosing mental illness and treating people prior to them exhibiting any behavioral symptoms.

Disorganized thinking

Mon, 02 Mar 2009 23:04:07 +0000

As I’ve claimed previously, Big Pharma’s crimes and cover-ups will soon make Big Tobacco’s scandals look like jaywalking. AstraZeneca’s Seroquel trial began last week, and the industry’s criminal antics surrounding anti-psychotics are coming into better focus. Documents introduced as evidence are confirming that, like Eli Lilly with Zyprexa(Kills), AstraZeneca knowingly downplayed the fatal side-effects of their toxic pills. They covered up the fact that Seroquel causes diabetes and massive weight gain, and have been gaming the drug approval process to expand the diagnostic reach of their drugs. In a move which hits new lows, even for Pharma, documents introduced into evidence reveal sex scandals and conflicts of interest in the approval of Seroquel for treating depression, the burying of unfavourable studies, and deeper insight into the pathological cognitive dissonance underlying Pharma’s logic. Get ’em while they’re hot! 43_Exhibit 15.pdf

Open Letter to the FDA

Thu, 11 Sep 2008 23:18:11 +0000

To: Sandy Walsh <sandy.walsh@fda.hhs.gov> Cc: World Subject: Establishing the Validity of Pediatric Bipolar Disorder Dear Miss Walsh, I am a professional educator, software architect, and a doctoral candidate at Columbia University’s School of Journalism. I am outraged that the FDA is abusing its power and violating the public trust by supporting the corporate interests of the pharmaceutical lobby. The drug companies are shamefully maneuvering to expand the market for the multi-billion dollar a year anti-psychotic industry by extending the diagnostic criteria of the purported mental illnesses their toxic pills are prescribed to treat. The FDA has recently taken the unprecedented action of effectively legislating the existence of a disease, a disease whose existence is denied by many experts on both mind and body. The diagnosis of Pediatric Bipolar Disorder does not exist in the DSM IV, is not recognized by public or private insurance companies, and is the subject of intense debate between psychiatrists, psychologists, social workers, and therapists. When did the FDA become authorized to construct/validate new diagnoses or decide who is mentally ill? I have been closely following the heated controversy surrounding the diagnosis of Bipolar Disorder in children since the tragic death of Rebecca Riley. Rebecca was diagnosed with Bipolar disorder at 2 years old, and was killed when she was 4 by an overdose of anti-psychotics. This past year, Frontline aired The Medicated Child, a provocative investigation of the widespread experiment being conducted on the innocent children of America. I beg you to watch this documentary before making any more decisions about the existence of this alleged disorder. The piece demonstrates how our children are being chemically swaddled, and how these drugs are being systematically deployed as instruments of discipline and control. The public has a right to full disclosure on this important matter of public health! I am shocked that you have still not issued a statement explaining your position on Pediatric Bipolar Disorder - What behavioural symptoms constitute this alleged disease, and how were these criteria arrived at? What is the progression of this illness and what are the mechanisms are involved in its treatment? Who was consulted in the validation of this disease, and have their research findings been vetted by a disinterested scientific community? The FDA’s complicit involvement in a mass experiment on an entire generation of American children demands transparent accounting. It is absolutely imperative that the FDA shine some light on its backroom dealings with the Big Pharma. Sincerely, Jonah Bossewitch

Magic potions, strange trips, and healing plants

Wed, 21 May 2008 00:19:51 +0000

Last week I paid tribute to Albert Hoffman at an event hosted by Reality Sandwich. I have been following the site for a while, and really enjoyed the screenings and the conversation (led by John Perry Barlow and Daniel Pinchbeck). I was a bit startled to encounter a perspective that I hadn’t thought about for a while. There were psychedelic enthusiasts who faithfully imagined the world being a better place if we all took a little trip (slight caricature, but bear with me). After a few years working on the Icarus Project and immersed in academia I found this attitude slightly jarring. Talk about technological determinism - our salvation in the form of an external molecule? I happen to think that a bit of psychedelic experimentation might certainly help make the world a better place, but for one thing, if society were truly tolerant of freaks and drugs, we wouldn’t need them so badly in first place. For another, psychedelics are arguably more available now than ever before, and they haven’t (yet) catalysed the transformation imagined. But what really bugged me is how this counter-cultural rhetoric would play directly into the hands of Big Pharma. Their message for years is that happiness can be found at the bottom of a pill bottle. Try to vividly imagine what these drugs would look like in their hands - the clinical administration of extracted active ingredients, outside of the usual cultural sacred context. This wouldn’t accelerate the evolution of consciousness, just the flow of capital into Pharma’s coffers. I also found it interesting to trace the genealogy of LSD back to psychiatry. To be completely fair, Reality Sandwich’s message isn’t so simple, but I do feel its important to imagine how these messages might be appropriated. I’ll leave you with one of the shorts from Post Modern Times: Consciousness is the Key

Supervillains, Systemic Corruption, and the Children

Tue, 18 Mar 2008 23:42:45 +0000

I’ve been drafting this post on Frontline’s provocative investigative piece The Medicated Child since it aired, and the longer I put off finishing this the more connections pile up. Since this has aired, we have learned that anti-depressants are no more effective than placebos (although more expensive placebos bring more relief than the generics ;-), there really is prozac in the drinking water, and the $15.9 billion ‘07 market for anti-psychotics is expected to grow to $17.8 billion by ‘11. But the Frontline doc is a must watch for lots of reasons. The piece profiles three children who have been mis-diagnosed as bipolar. While the plausibility of a bipolar diagnosis in children is still being hotly debated, diagnoses are up 4000% between ‘98-‘03. In this piece we meet the lazy, obese, depressed parents who impose their sick worlds on their unsuspecting children who show glimmers of imagination and life, even as they are being chemically swaddled. In one scene we watch a mother feeding her son corndogs, gatorade, goldfish, and cookies, and wondering why his behaviour becomes hyperactive sometimes. In another, a young girl is setup and goaded by her psychiatrist to share her violent fantasies, which she likely learned from here father, an Iraqi war veteran. In another, a mother is told by the psychiatrist that drugs are the only therapeutic option, and she leaves the office with an additional prescription for Xanax for her son’s first day-of-school anxiety. And the images of the poor boy who developed a neck tick on Risperidol were so disturbing I almost couldn’t bring myself to write this post. The extent of the systemic corruption that these profiles reveal is mind boggling. Not only must we be concerned with conspiracies within the pharmaceutical industry, but now Big Food is getting in on the action. So, get out your tin-foil hat and lets start constructing a few narratives to help our feeble minds comprehend this complex, emergent phenomenon. The high-fructose corn syrup in our nations food supply, is modifying our children’s behaviour so they are diagnosed with a condition that is treated with a drug which makes them insatiably hungry! These drugs also cause obesity and diabetes, but that’s OK, because Big Pharma is investing heavily in diabetes treatments as well. I don’t actually believe that the world has been overrun by super-villains. But these narratives do beg the question (which I have written about here before) - are conspiracy theories ever a useful heuristic for teasing out the emergent correlations from complex systems. Are these causal? Who would you charge with the crime? With corruption this systemic, the responsibility is distributed, accountability nil, and momentum virtually unstoppable. An entirely alternative perspective which skirts the ideologically loaded value judgement of designating these behaviors “illnesses” is suggested by Harvard psychologist Dan Gilbert, author of Stumbling on Happiness (watch his 18 minute TED talk here). Perhaps the conditions that the pharma funded psychiatric establishment brands as illnesses are actually the normal responses of our psychological immune systems. The world is currently a very traumatic environment, and I think we need to seriously reconsider ways we can, in the words of The Icarus Project “inspire hope and transformation in an oppressive and damaged world.” I recently learned about ridiculously simple casual game called mind habbits, which seems rather superficial at first blush, but indicates just how malleable and programmable the 3lb lump of neurons on our shoulders can be. The researches behind the game began with the question “Can we purposefully design a game that helps people feel good about themselves?” Their initial amazing results suggest alternate approaches to scaling up talking therapy, other than miracle pills. So, learn more about psych-pharmacological harm reduction, ignore those frowns, and think good thoughts - positivity takes practice.

We are all dying, sick, and crazy

Wed, 13 Jun 2007 00:18:05 +0000

My visits to the Informedia lab have consistently generated futuristic ideas (and corresponding posts), and my trip this spring was no exception. This time I was thinking alot about what kinds of schemas will be employed after their prototype moves beyond watching grandma? When this kind of a system is inevitably rigged up to a school or a prison, or fed raw streams from live surveillance cameras? My money is on the Diagnostic Statistical Manual of Mental Disorders, an instrument that is arguably becoming the de-facto catalog for the full range of human behavior and experience. In some respects, this progression parallels the notion that nobody dies of old age anymore - they die of heart failure, cancer, or other diseases. And, as the title of this post cheerily states, we are all dying, we are all sick, and we are all crazy. As crazy as it sounds, the DSM is poised to become the lens through which we interpret all of human behavior. Given its breadth of coverage, I challenge anyone to find me a normal, healthy individual. It’s ambition reminds me of William James’ Varieties of Religious Experience, except in our generation, the full range of human experience has been radically pathologized. BTW - the folks who brought us Sexual Orientation Disorder are hard at work on V 5.0 of this catalog - and there is a call out for diagnosis suggestions.